11/21/2007: "Fundraiser, Dec 7th, 6 PM at the County Fairgrounds!"
A fund raiser that will be held Friday, December 7th at the SJC Fairground Building: There will be dinner, dancing and an auction. We need volunteers to help with all aspects of this project. We are also seeking donations for auction items. We encourage everyone to think Out-of-the-Box and THINK BIG. Help us make this a successful event. Contact Joan Byrne (378-8432) or Mary Karen Ryan (378-2524) with any auction items you would like to contribute or click on the link for donations.
As you may know, two of the four Banry children are afflicted with a genetic disorder called Mucolipidosis (ML) Type III, which is caused by a change in the instructions that direct the way our bodies grow and develop. Unfortunately, at the present time, there is no cure for ML. Both boys have experienced several surgeries and continued complications.
They have recently had a permanent severe loss of mobility due to their deteriorating health. This has caused an inability to complete simple tasks without severe pain and loss of function. They are now unable to walk without assistance and require the use of scooters and wheelchairs, but these devices do not fit inside their current home. The boys must be carried or crawl to move about the house. This has deteriorated the quality of life for the entire family.
The Banry family lives in a two-story, 100 year old farm house on an extremely small parcel. Contractors have found that it is not possible to remodel or expand the home to create wheelchair access.
If you can help or have any suggestions please contact firstname.lastname@example.org .